Why we chose this test
ME may affect the finer control of blood flow pressure adjustment with change of posture. The dynamics of blood flow alter dramatically when standing up straight from a horizontal position, as gravity immediately opposes the return of blood to the heart from the legs and lower half of the body. The reflexes which operate in normal health to compress the large leg veins (and prevent pooling) sometimes don’t operate effectively in ME. The difference between standing and lying blood pressure in this circumstance is known as a ‘postural drop’. What we are hoping to demonstrate is that this improves when a patient is experiencing a period of remission. Or, if we have enough healthy controls feeding into our website, the contrast between the healthy controls and pwME will reinforce the already existing research on this subject. We would like to thank Dr Weir (retired consultant physician in Infectious and Tropical Diseases) and Dr Kenny de Meirleir (professor of physiology and internal medicine at the Vrije Universiteit Brussel) for helping us with this test.
Click on the images to enlarge.
Example of a personal graph generated by the website
The patient above reported feeling well on days when the result was zero. On days when the result was higher the patient felt more symptomatic.
For example of graphs comparing treatments and changes in poor man’s tilt table tests follow this link:
Comparing treatments for ME
Please do not try this test on your own!
You will need a blood pressure monitor (Available on Amazon for £14).
Ask someone to attach the monitor to your arm. Lie down comfortably for 3 or 4 minutes and relax! Press start button. Now ask your assistant to record your systolic and diastolic pressure and pulse rate then stand up and tell them to make a note of how you say you feel on standing up 1) normal 2) slightly dizzy 3) very dizzy 4) couldn’t stand up. When you have been standing for 1 minute, press the start button again and ask your assistant to record your systolic and diastolic pressure and pulse again.